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About me

Hello Internet World!! My name is Amelia but I go by Amy for short.  I am a 33 year old mother of two very active kids.  I have a pretty big family and weirdly enough we all live on the same block.  I have a brother who served for the United States Marine Corp(Hoorah) for six years and was deployed to Iraq twice.  As you can see I am so very proud to have a Hero as a brother. Both my parents are retired but are the most hard-working retired people I know.  I have been blessed to have a great man by my side for seven years now. He is one of the many reasons I get up every morning. 

With all that being said, you would think my life sounds pretty easy.   Well, even with the ideal life I may have, I still do have my share of challenges. One of the major challenges I face and the motivation for this blog is my current fight with Kidney Disease. I would like to share my experience for all those who suffer or feel defeated by this illness. I would like families who are probably just like mine to know that it’s not the end of the world for your love one.

 My goal is to make this blog a forum for all of us who have this illness to know there is support out there. We just need to take the time to share our stories and I’m starting by sharing mine. 

I have Kidney Disease but I am not my Disease……

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4 responses to “About me

  1. Kerry Hugo

    12/16/2010 at 8:15 am

    very helpful

     
  2. LS

    12/17/2010 at 3:10 pm

    Hi Amy,
    I just wanted to thank you for starting this wonderful log. My family and I could have benefitted from it long ago. My mother passed a year ago next week from End Stage Renal Failure. She was diagnosed at the young age of 20 (1979) and survived 30 years to the age of 52. I am astonished to think she lived for so long, especially given the few resources available early on. I tell you this because you are fortunate not only to have medical advances on your side, but now, through the internet, have a resource with which to seek and provide support & info to others. My mother was a fighter and many people would say that the only reason she was still alive was because of my brother and me. However, she did not have much emotional support or a network to hook in to. Despite the large population of dialysis patients here in my area, there are no support groups. I hope to in time change that and find a way to start one for both dialysis patients and their loved ones. Thank you for your blog. I wish you and your family all the best.

     
    • woundedhealer1

      12/21/2010 at 7:06 am

      Thank you so very much for sharing your story. It makes me want to work harder to ensure that everyone has support and resouces out there. My family is the greatest, however,when I was diagnosed they had no idea how to support me. I never felt so alone! It took a lot of time and many hours of crying to my own mother to understand how much of a struggle it really is. We as a family no idea what to expect. There were many mistakes along the way and lots of questions that needed to be asked in order for us to be where we are at today. Honestly, it shouldn’t have to be that way. I’m hoping in the near future that will change.

      Thank you again and have yourself a HAPPY HOLIDAY!

       

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